A long Sunday
Jan. 27th, 2013 07:22 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
fjmI went to see my dad in Liverpool Royal Hospital yesterday, and was relieved to see him looking far better than he did when we saw him before Christmas. He is on water tablets and the inflammation is going down.
I looked up nephrotic syndrome, and discovered it's probably a containable, rather than curable, disease (steroids). Then I looked up "nephrotic syndrome" and "coeliac" given that both are auto-immune syndromes, and promptly got depressed. "Rare" apparently, but with a surprisingly large number of hits for something "rare". This one is typical: http://www.casesjournal.com/content/2/1/7018 And there are quite a few others that mention a gluten free diet as helpful.
I find myself thinking back to 1997 when I seemed to know a surprisingly large number of people who had or knew someone who had coeliac, for something that was supposed to affect only 1 in 3000 people.
And I also find myself thinking about last Jan-April when I had very similar symptoms to my Dad now (blown up like a balloon, very itchy, but I didn't have a rash): my tests came back negative for rheumatoid arthritis, I tested quite high for sugar (odd for someone who usually has hypoglycemia), and really severe inflammation that was not reacting to anti-inflammatories *At all*. There is no question it was viral: as I started to feel warm again (I'd been very cold most of the time) we found the pain fluctuated with my temperature. But if it happens again, I will insist they add kidney function to the list of checks. Hypochondria is us, but I've been right almost every time I made a suggestion to the GP.
Anyway, that out of the way, I spent today catching up on Eastercon and Worldcon related emails and generally making it possible to get things moving. More soon on that I hope, but right now, if you fancy making me a life sized pigeon (knitted, sewn, papier mache) do get in touch.
I looked up nephrotic syndrome, and discovered it's probably a containable, rather than curable, disease (steroids). Then I looked up "nephrotic syndrome" and "coeliac" given that both are auto-immune syndromes, and promptly got depressed. "Rare" apparently, but with a surprisingly large number of hits for something "rare". This one is typical: http://www.casesjournal.com/content/2/1/7018 And there are quite a few others that mention a gluten free diet as helpful.
I find myself thinking back to 1997 when I seemed to know a surprisingly large number of people who had or knew someone who had coeliac, for something that was supposed to affect only 1 in 3000 people.
And I also find myself thinking about last Jan-April when I had very similar symptoms to my Dad now (blown up like a balloon, very itchy, but I didn't have a rash): my tests came back negative for rheumatoid arthritis, I tested quite high for sugar (odd for someone who usually has hypoglycemia), and really severe inflammation that was not reacting to anti-inflammatories *At all*. There is no question it was viral: as I started to feel warm again (I'd been very cold most of the time) we found the pain fluctuated with my temperature. But if it happens again, I will insist they add kidney function to the list of checks. Hypochondria is us, but I've been right almost every time I made a suggestion to the GP.
Anyway, that out of the way, I spent today catching up on Eastercon and Worldcon related emails and generally making it possible to get things moving. More soon on that I hope, but right now, if you fancy making me a life sized pigeon (knitted, sewn, papier mache) do get in touch.
no subject
Date: 2013-01-27 10:37 pm (UTC)